Navigating Resources for Families with Newly Diagnosed Autistic Children in Wisconsin: A Step-by-Step Guide

While we acknowledge and support the broad spectrum of neurodivergence at Islands of Brilliance, this post is specifically focused on autism. When your child receives an autism diagnosis, it can feel like stepping into an entirely new world—one that can be a bit overwhelming, but also full of potential. In Wisconsin, we are fortunate to have a wealth of resources to support families, but knowing where to start can still feel daunting. At Islands of Brilliance, we believe every family should feel empowered to navigate this landscape confidently. Whether you’re searching for early interventions or simply looking for someone who understands your journey, we’ve compiled a list of ten actionable steps to help you get started.

1. Educate Yourself About Autism

Your child’s diagnosis is just the beginning of your learning journey. Start by diving into resources from trusted organizations like your local  Autism Society chapter. Their fact sheets and webinars offer valuable insights into what autism looks like and how you can best support your child. If you’re looking for first-hand perspectives and resources created by autistic individuals, the Autistic Self Advocacy Network has some wonderful resources. For a deeper dive, consider books like “Uniquely Human” by Dr. Barry Prizant, which reframes how we understand autistic behavior in a compassionate, practical way.

Another great resource is joining online communities like MyAutismTeam, where you can connect with other parents navigating similar challenges. The collective wisdom of these networks is invaluable.

2. Contact Wisconsin First Step

When you’re not sure where to turn, Wisconsin Wayfinder Children’s Resource Network is a fantastic initial point of contact. This statewide resource helps families with special needs children find local services, early intervention programs, and more. You can reach their helpline at 877-947-2929 or connect with a children’s resource guide. They can guide you through everything from therapy options to financial assistance programs, tailoring recommendations to your child’s specific needs.

3. Get Connected with Early Intervention Programs

Early intervention can make all the difference. If your child is under three, Wisconsin’s Birth to 3 program offers free services designed to support development. You can contact your county’s Birth to 3 office to schedule an evaluation (find your county here). If your child is older than three, your local school district’s Early Childhood Special Education services will provide ongoing support. Most local school district websites have contact information to find out more about special education resources. Both programs offer therapies, developmental assessments, and plans to help your child thrive.

4. Understand Your Child’s Rights (IDEA)

Learning about the Individuals with Disabilities Education Act (IDEA) is crucial. It guarantees your child’s right to a free, appropriate public education (FAPE), and understanding this will allow you to advocate for the support your child is entitled to. The Parent’s Guide to Special Education in Wisconsin is a good place to start, providing a thorough breakdown of how special education services are structured. For deeper legal guidance, Wrightslaw is an incredible resource, offering in-depth advice for navigating IDEA and related legal matters.

5. Get an Individualized Education Program (IEP) or 504 Plan

If your child is school-aged, it’s time to start the IEP process. An IEP or a 504 Plan ensures your child gets the necessary accommodations in school, tailored specifically to their needs. The IEP process starts with a formal evaluation, which you can request in writing from your child’s school. Not sure how to begin? Use a sample request letter to get started. To understand the differences between IEPs and 504 Plans, this guide provides clear explanations.

6. Connect with Autism Support Organizations

Building a community of support is crucial. The Autism Society offers local events, virtual meet-ups, and support groups where you can connect with others who understand what you’re going through. Becoming a member of their network will keep you informed of events, trainings, and legislative updates. You can also reach out to your local chapter of the Autism Society for information on specialized therapy services. Whether it’s emotional support or specialized knowledge, these organizations offer lifelines to help guide you.

7. Apply for Financial Assistance

Navigating financial aid can feel overwhelming, but programs like the Children’s Long-Term Support (CLTS) Waiver and Katie Beckett Medicaid are designed to help families access essential services without excessive financial strain. To start the process, contact your county’s human services department to apply for the CLTS Waiver (find your contact here). Additionally, you can learn about the Katie Beckett Program on the Wisconsin DHS website. If your child qualifies, these programs can cover everything from therapies to respite care.

8. Explore Therapy Options

Therapies such as in-home or in-clinic specialized autism therapy (child-led play therapy, Denver Start Early Model therapy, ABA therapy, executive functioning training, etc), Speech Therapy, and Occupational Therapy play a vital role in helping children with autism develop social, communication, and life skills. Your pediatrician can offer referrals, but you can also explore therapy providers through Wisconsin’s Provider Network. Consider telehealth options like Huddle Up if access to in-person services is limited in your area. Overall, it’s important to understand that you have choices when it comes to therapy for your child, and your initial choice does not have to be your ultimate choice! 

9. Join Parent Support Networks

You are not alone. Finding a network of parents who understand your journey is essential to maintaining emotional resilience. Islands of Brilliance offers a support group for parents of neurodivergent students, Brilliant Mornings (meets one Saturday morning each month).

Family Voices of Wisconsin provides advocacy, training, and peer support for families navigating the healthcare and educational systems. You can join their network here. You’ll also find connection and solidarity in online groups, like the Wisconsin Parents of Autistic Children Facebook group. Being part of these communities offers not only emotional support but also practical advice from those who’ve been in your shoes.

10. Create a Plan for Self-Care

Caring for a child with special needs is rewarding, but it can also be exhausting. It’s important to make time for yourself. Look into respite care services through organizations like the Respite Care Association of Wisconsin, which helps families find qualified caregivers. You can also apply for respite care funding through the CLTS Waiver program. For immediate stress relief, try mindfulness apps like Headspace (which often offers free subscriptions to caregivers), and don’t hesitate to reach out to friends or family when you need a break. Remember, taking care of yourself is an important part of taking care of your child.

At Islands of Brilliance, we know that navigating these early steps can be challenging, but you don’t have to do it alone. Wisconsin offers a robust system of support for families with autistic children—reach out, connect, and take this journey one step at a time. You’ve got this!